Adult Gathering, United and Autistic (AGUA)
P.O. Box 1755, Glendora, CA 91740
Contact: Carla Christensen
Provides information about grants, financial assistance, funding strategies and other resources to help families coping with autism.
Autism Online Information
Autism Network International (ANI)
P.O. Box 35448, Syracuse, New York 13235-5448
ANI is an autistic-run self-help and advocacy organization for autistic people. Membership in ANI includes a subscription to the newsletter, Our Voice ($15 annually) and a pen pal directory for autistic people and people with related developmental neurological abnormalities (for example, hydrocephalus, Tourette syndrome, Williams syndrome).
Autism Research Institute (ARI)
Dr. Stephen Edelson
4182 Adams Avenue, San Diego, CA 92116
877-644-1184 ext.5 En Español
Research Center publishes quarterly journal, information packets on Autism and many treatment options. Request their list of resources. ARI publishes a quarterly newsletter, Autism Research Review International. The newsletter presents current developments in biomedical and education research. Also has a list of publications including information packets, a bibliography of books, and videotapes for rent or purchase.
Autism Society of America, Inc. (ASA)
4340 East-West Hwy, Suite 350 Bethesda, Maryland 20814 U.S.A.
1-800-3-AUTISM/ 301-657-0881 Fax: 301.657.0869
Publishes a quarterly journal, “Autism Advocate.” Distributes information packets on autism topics. Check out ASA resource database, which lists resources by city. www.autismsource.org
Autism Tissue Project
The Autism Tissue Program Autism Speaks 5455 Wilshire Blvd., Suite 2250 Los Angeles, CA 90036
Offers information in Spanish and English. The ATP is a joint effort of ASA Foundation, NAAR and The M.I.N.D. Institute. Our organizations are determined to understand autism spectrum disorders by providing approved scientists access to the most fundamental, rare, precious and most necessary of resources; human brain tissue.
California State Council on Developmental Disabilities
1507 21st Street, Suite 210, Sacramento, CA 95811
An independent state agency to ensure that people with developmental disabilities and their families receive services. 5
Global Autism Collaboration (former Center for the Study of Autism)
The Mission of the Global Autism Collaboration is to collaborate with autism organizations worldwide to generate necessary, political, legal and social change to deal with the global autism health crisis. Visit their website for a list of partner organizations and resources.
Cincinnati Children’s Hospital
3333 Burnet Ave., Cincinnati, Ohio 45229
An in-depth list of resources available in the Southwest Ohio area.
Autism Speaks / Cure Autism Now (CAN)
5455 Wilshire Blvd, #2250, Los Angeles, CA 90036-4234
Autism Speaks is an organization dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
Council for Exceptional Children (CEC)
2900 Crystal Drive, Suite 1000, Arlington, VA 22202-3557
Toll free number 866-509-0218
Phone: 888-232-7733 TTY: 866-915-5000
Riverside County, Office of Education
800-442-4927 for Daycare (Licensed) Provider Resource and Referral
888-296-KIDS for Subsidized Child Care
Defeat Autism Now (DAN)
Autism Research Institute
4182 Adams Avenue, San Diego, CA 92116
Defeat Autism Now (DAN!) is a project of the Autism Research Institute. DAN! Doctors are trained in the “DAN! Protocol,” an approach to autism treatment which starts with the idea that autism is a biomedical disorder.
ARI holds biannual conferences called “ARI Conferences” ARI Conferences cover a variety of topics in treatment areas: medical, behavioral, early intervention, school-age education, and sensory issues, as well as one-day tracks on diet and on adult issues. For conference information go to ariconference.com
Desert Kids Directory
78381 Desert Willow Drive, Palm Desert, CA 92211
A publication/ family resource guide that lists kids programs, care centers, and resources available in the Coachella Valley.
Families & Autistic Children Together Succeed (FACTS)
Support group offering activities, meetings, etc. for families in the Temecula area. Check website for current info. 6
Families for Early Autism Treatment (FEAT)
P.O. Box 255722, Sacramento, CA 95865
4733 Torrance Blvd. #804, Torrance, CA 90503
A non-profit organization of parents and professionals, designed to help families with children who have received the diagnosis of autism or PDD NOS.
Family Resource Network
1425 South Waterman Drive, San Bernardino, CA 92408-3426
800-974-5553 or Secretary 909-890-4788
Provides information and support to families of children with disabilities. Parent representatives are available to help families access services and resources within their communities.
University Center for Developmental Disabilities (UCDD)
37500 Cook Street
Palm Desert, CA 92211
760-341-2883 ext. 75495 or 909-537-5495
The University Center for Developmental Disabilities (UCDD) provides a program for children with autism in the Palm Desert area. Services include direct instruction to children to increase socialization, communication and appropriate behaviors and support activities for parents and siblings.
Funding Autism Treatment
Provides information about resources and strategies for funding autism, including grants, financial assistance programs and tax-advantaged accounts.
The Help Group
Serving children with autism and other special needs. The Help Group offers diagnostic assessments, intervention, family support, graduate and post-graduate professional training, research programs, conferences, seminars and publications.
Inland Counties Regional Center for Developmental Disabilities (IRC)
1365 South Waterman Avenue, San Bernardino, CA 92408
A non-profit corporation that receives governmental funding, IRC is responsible for providing services to developmentally disabled individuals and their families. Services include: diagnosis and assessment; coordination of services and case management; program planning, monitoring and evaluation; advocacy.
International Center for Disability Resource
Main Office 13200 Strickland Rd Suite 114 #332 Raleigh, NC 27613 919 349 6661 www.icdri.org/links.htm
A collection of disability resources and practices. Offers educational opportunities, outreach and training. 7
Lend 4 Health
A site that helps families by raising non-interest loans for families who are pursuing the biomedical treatment for their children with ASD
Medical Investigation of Neurological Disorders
UC Davis Medical Center
2825 50th Street, Sacramento, CA 95817
(916) 703-0280 or 888-883-0961
National Dissemination Center for Children with Disabilities (NICHCY)
1825 Connecticut Ave. NW, Suite 700, Washington, D.C. 20009
A clearinghouse of information on children and young people with special needs. Request their publications catalog. Many materials also available in Spanish.
Parents Helping Parents (PHP)
Sobrato Center for Non-profits
1400 Parkmoor Ave., Suite 100
San Jose, CA 95126
Toll Free in CA (855) 727-5775
Request PDD/Autism information packet and to be placed on the mailing list for PDD/Autism and FEAT (Families for Early Autism Treatment).
Parental Stress Hotline
CHILD HELP USA HOTLINE- 24 HR.
800-422-4453 Then Push 1 to Talk to a Hotline Counselor
Counseling and referrals available in 140 languages. 24-hour crisis telephone assistance for persons under stress. Telephone counseling primarily, but can also provide home visiting programs and respite care.
Research Excellence in Autism & Communication (REACH) Kennedy Krieger Institute
707 North Broadway, Baltimore, MD 21205
Program of several federally and privately funded projects designed to examine and understand the evolution of autism and communication. REACH employs techniques designed to better understand underlying genetics, neuro-biologic, attentional, executive function, language, social interaction and cognitive factors in individuals with autism and related disorders.
Autism Support of Imperial County
Has meetings, events, and resources for families and educators. 8
The Association for Persons with Severe Handicaps (TASH)
1001 Connecticut Ave., NW, Suite 235, Washington, DC 20036
TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society id the norm. TASH is concerned with human dignity, civil rights, education, and independence for all individuals with disabilities. They actively promote the full inclusion and participation of persons with disabilities in all aspects of life.
TACA (Talk About Curing Autism Now) Southern California Support Group
TACA National Office: 3070 Bristol Street, Suite 340 Costa Mesa, CA 92626
National non-profit organization dedicated to educating, empowering and supporting families affected by autism. For families who have just received the autism diagnosis, TACA aims to speed up the cycle time from the autism diagnosis to effective treatments. TACA helps to strengthen the autism community by connecting families and the professionals who can help them, allowing them to share stories and information to help improve the quality of life for people with autism.
P.O. Box 208, Tyrone, GA 30290
News and links, online chats, message boards, database and more.